Our relentless community thrives because of people. Our people are patients, caregivers, scientists, advocates, innovators and disruptors. Our global community is united by one mission: improve the lives of those affected by KIF1A Associated Neurological Disorder and accelerate research to find a cure.
Reminder: This is a public forum. And that’s a great thing, it allows us to maintain a searchable knowledge base accessible to all newcomers and researchers. All of the content on this site will be publicly available. Please avoid posting any information that you consider private.